Sunday, August 9, 2009

Good Morning, Sunshine!

The phrase "a little goes a long way" is certainly true for Judah! His dose of Sinthroid went from 1.2 mL to .6 mL, not a big difference by any means. (Technically, .6 mL is equivalent to 12 drops - a very little bit.) However, what a difference the change has made for my little sleepy head! He's finally woken up to the world:) It's so fun to have more opportunities to talk face-to-face with him, see his dark blue eyes, and enjoy just how adorable he is because he's AWAKE!! He's still sooo laid back - not that I'm complaining. He takes every hug, kiss, rub, pat, tickle, cheek-pinch, smother, and lovin' in stride - doesn't even phase him. Personally, I think he knows just how special he is and how much he really missed while he was "away from home", so he's just enjoying the "little king" status and making up for lost time! I know we are:) Still no change in his ability to focus or track. I'm apprehensive about his appointment this week. I have a hard time really grasping the fact that the dr. could give us devastating news, but I know the possibility exists. I think my mind is protecting itself. I still grieve over so many little things. I guess I won't be ready to grieve over anything big until that moment of knowing comes. But isn't that what God's grace is? Perfectly sufficient and available at the exact moment I need it. In the meantime He gives me grace to cope with the daily disappointments, concerns, and anxieties. I've never had to watch a child's development so closely, but with Judah I'm constantly watching him for cues and signs of communication and development. We're a part of an early development program for kids with special needs from birth-3 yrs. offered through the public school system. It's a really great program, and we're excited about it. Currently, Judah has an occupational therapist and a teacher that come to our home 3x a month to work with him and us as a family. Right now it's about his cognitive and motor skills development, so there are things I'm watching for and working on with him...even though he's so little. Amazing what a mom can do with her 2 month old! They include the entire family, and show us how we can best help Judah, giving him every possible advantage so he can reach his full potential. Right now one of our main goals over the next year is to help Judah reach as many developmental milestones as possible. I had to throw out my expectations and the "calendar" of milestones and come at it from a new angle. It doesn't matter how old Judah is when he hits the milestone. The goal is for him to get there, and then get to the next and the next. And we will celebrate each and every milestone that he hits! When he looks at us, smiles purposely at us, reaches for and grabs our fingers, holds his head up - each one will be a small triumph for our little champ...and for us. Again, I'm so thankful that God has blessed us with such great care for Judah. I never worry that he'll be left behind or somehow fall through the cracks. There are too many people invested in this little guy's life.

Not to mention the numerous people that are invested spiritually through prayer in his little life. Judah is so blessed. And of course, so are we. Even more so, because we have the privilege of knowing and having Judah.

4 comments:

  1. great to catch up this afternoon - will be praying for you and your appointment this week!

    lindsey

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  2. Praying for you as you face this appointment, for peace that passes all understanding......Hudson was in the early development program it was AMAZING...his therapists I believe are a large part of where he is today! IT is a great program, so glad that Judah is in it..that is wonderful!
    I continue to pray for you guys....beautiful pictures on facebook...they are amazing!

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  3. Enjoy keeping up on your blog. This is Aunt Amanda even though it says Jenny. We love you guys.

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  4. It's amazing how God connects us to people that we may have never met through our special needs children. Hold on to the miracles Judah will give you everyday....even though the doctors may tell you they do not know how far Judah will come...know in the fact that God has a very, very special plan for him and HE is allowing us to be witnesses of that fact!
    Know that through each small blessings HE gives you with Judah, it will give you strength to face the next hurdle.
    We will continue to pray for you. May God keep you strong in your journey.
    God's love and mine Diane Rice

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