Well, I think maybe I'm finally turning a corner of sorts. I think this journey with Judah will have many, many corners (of all sizes), but I'm thankful for the little one that brought me to the computer this morning...even though there's laundry, floors, dishes, beds..... I don't feel as overwhelmed today as I did yesterday. There's still a never-ending list of "chores" for this Mommy, but that's true for any Mom really. But in regards to Judah I feel a little more...comfortable, I guess. I just need to get through today. And for today, there's pumping, feeding, comfort nursing, and meds. No doctor appts., no sickness, no shots, no clinics. And the list of chores can wait. The sun is shining. I got a shower. My bed is made. My teeth are brushed. The kids are playing happily. Veggietales is in the cd player. It's a beautiful day for a walk. Jesus loves me.
Judah has turned a corner, too. At his weight check on Friday we found out that he had gained 3 oz. since Wednesday! That's more than double what the dr. said he needed to gain - praise the Lord! Another big deal is that he's taking in everything he needs to orally! I haven't been using his feeding tube - yippee! He's doing really well on a schedule. I still don't like it, but am praying that it's temporary. Someday I'm hoping to be able to nurse him exclusively by cue.
And just because I don't want to forget this "fun" fact... We've applied for Social Security Income (Disability) for Judah. It's a long process and pretty involved. Our social worker from the NICU is responsible to get the SSI people the info. they need regarding Judah's stay there. The doctors/specialists that saw him, tests he had and who ordered them, equipment he used, meds/fluids they gave him and who ordered them - it's an exhausting list. She told us that in gathering the info. she had printed off 37 PAGES of medications/fluids alone! The mind reels.
Also look into Katie Beckitt. It is a form of title 19 for handicap children. It was a hugh relief when Christopher got it. Covers almost everything from equipment to surgeries.
ReplyDeletePraise the Lord he is gaining weight! Enjoy the moment!