Health & Wellness Update Part II

Over the last few weeks we've been able to knock out some of these bigger appointments.

*Judah and I both love the new eye surgeon. He's young and gentle, personable and very likable. It was a good experience all around. And...NO SURGERY! When Judah gets to the point that his lids are drooping down past his pupils more than 50% of the time we'll need to move forward; but not before then! The next procedure will be a little more complex, though. When he adjusts the upper lid to bring it up more, he'll also need to adjust the lower lid to bring it up a little to prevent further dryness and damage to the eye and cornea as he sleeps somewhat open-eyed. It's a tough situation. The scar tissue that Judah was born with, rather than muscle, just causes more challenges and complexities than one might expect. But, he can see, and I'm thankful for that!

*The EKG looked great! No thickening of the lining there - so thank You, JESUS!

*We met with rehab for Judah's swallowing, etc. Not the most encouraging appointment. I didn't realize that I was really hoping she would be able to say that he'll grow out of the swallowing issues, or it will get better, or it's just a matter of time - he looks great! But no. He has low muscle tone, and that just effects everything. He may not ever get away from thickened liquids of some kind. That's really disappointing to have to admit. She assigned us some exercises to do, but that's really not going well. As in, it's not going at all. Judah hates them. And it's really hard to know if he's actually doing them correctly or not. And he hates them, so he doesn't want to do them anyway. Because he actually hates them. So, that's that for the moment.

*We had his IEP/MDT a couple weeks ago. I'm finally to the point where I can get through an IEP and not cry on the way home. Well, I've done it twice. Small victories. But they're just really hard. I always walk away feeling like I'm not doing enough. And when there's one area that just doesn't see change or progress, I feel frustrated and like a failure. This has nothing to do with his team! They are wonderful! They are affirming, have positive things to say all the way through, and wrack their brains along with us for ways to help Judah be successful. Last year his teacher sent this to me:

This has meant so much to me! IEPs are just one of those things that will be hard... 

*Other than that, Judah has been healthy this cold/flu season. Praise Jesus! 

We went to Scooters for a muffin date. Sadly, they were out of chocolate chip muffins, so he had to settle for a giant cinnamon roll instead. He didn't seem to be too disappointed. Love this kid so much!