Wednesday, November 3, 2010

The CDC

We spent the morning with Judah at the Children's Developmental Clinic at the new Children's Hospital Specialty Pediatric Center. That's a lot of words to say we were in clinic all morning. We had to be there at 8, and for some reason, after seeing 8 different specialists over 4 hours, I'm a little tired. Still, I had to get here just to say that every single specialist we saw was impressed with how far Judah has come in the 9 months since we were there, and all had almost nothing but positive things to say about him and his progress! It was wonderful:) There were only 2 doctors that have any kind of follow-up in the near future.

Urology - the good news is that Judah has had some progress in this area. The "bad" news is that because of that progress, Judah will have 2 little inguinal hernias repaired...most likely during his palate revision in February. Thankfully it's a minor repair that can be combined with this other surgery.

Genetics - Since seeing this wonderful lady in July (we love our geneticist), a new Micro Array test has been developed. It will not only look at all of Judah's chromosomes, but will also target certain genes that are known for causing birth defects and learning difficulties in children. Because he's having surgery and will be in-patient, she can order the test after he's admitted, and avoid having to get pre-authorization from insurance. That way the insurance company can't say "NO", and we have another opportunity to look for a cause.

We don't have to go back to the CDC until next year!

That's really all that's noteworthy for right now. The pictures and video of his braces and stander will have to wait for another day. But let's just say Judah's doing awesome!:)

1 comment:

  1. Hi Bethany, I don't know if you remember me or not but I met you at the Children's Specialty Clinic about a month ago with my daughter Grace and just found your paper with Judah's blog written on it. I've read a couple of your posts from the very beginning and some from current. That is so awesome how far he's come! It's amazing how well these kids do! I can so relate to your journey and the feelings and everything you go through when dealing with a special needs child. It's definitely a walk of faith and that is all that keeps me going at times. I keep a CarePage for Grace. I can send you the link if you want to email me. My email is lizhanson18@yahoo.com. I think it's so cool how God orchestrates our lives and how I've gotten to know people I would've never known had Grace not been given to us. Take care and hopefully hear from you soon!

    God bless,
    Liz Hanson

    ReplyDelete