Friday, July 31, 2009

Add him to the list...

Judah had another weight check on Wednesday. 8 weeks old and a whopping 7 lb. 11 oz! He's such a little peanut, and still so "newborn". He still has a tiny cry, too. Everyone we run into just thinks he's the cutest. So adorable. Oh, how precious. What a doll. Of course I wholeheartedly agree! His growth looks good; an average of 4 oz. a week. However, we've added another specialist to our already long list. Judah will be seeing a Neuro-Opthamologist in 2 weeks. He's still not focusing on anything or tracking movement. I'm not really anxious about it, but I am kinda sad. It's so special and exciting that first time your baby really looks at you and follows your movement. You make that connection, and then before long, that little one is looking at you and smiling! I've been looking forward to that moment and that first real smile, but it hasn't happened. Judah looks over my shoulder or past me, always with a vacant stare. I love seeing his dark blue eyes and all of the facial expressions he makes, but it's hard not to get any response from him. The new specialist will run a lot of tests to see if his brain is receiving the signals from his eyes when he sees something, etc. We know that his brain didn't develop properly, and we anticipate developmental delays, but it's a little scary to actually be facing something right now that has the potential to be devastating. I think my brain won't allow me to think in those terms, though, because so far I've been ok. Still just taking it a day at a time.

Had to go to Childrens this morning for more blood work. Our pediatrician added some labs to be checked, too. Wanted to check his hormone levels to make sure he's getting the right doses. Judah isn't very alert. Super sleepy, way laid back, not real responsive. Low thyroid or cortisol levels can cause that. I'm hoping it's a low level and not something related to his syndrome. The Lord knows, and I trust Him to give me the grace to handle any and every result we get from tests and labs. Regardless, I'm so thankful for Judah and the gift that he is to our family. Tiny feet, the sweetest face, so cuddly.

2 comments:

  1. I enjoyed holding him so much that one time last week, Bethany! Wow! so many doc's. Omaha has a great group of physicians, though, huh! Hope you are feeling better today...

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  2. I think it is amazing the advancement in medial technology...what a blessing for sure! Please know that I continue to pray for you and your family! Praying for strength and wisdom....endurance. You are loved!

    Joshua 1:9, "Have I not commanded you be strong and courageous, do not be terrified and do not be discouraged, for the Lord your God will be with you where ever you go!!"

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