Tuesday, August 2, 2011

Praise & Percutaneous Nephrostomy Tubes

[I really just like saying that, because it makes me sound smart. And, frankly, I fear that if I quit, I'll forget it all together!]

Revelation 15:3b-4
"Great and marvelous are Your works, O Lord God, the Almighty; Righteous and true are Your ways, King of the nations! Who will not fear, O Lord, and glorify Your name? For You alone are holy; For ALL THE NATIONS WILL COME AND WORSHIP BEFORE YOU, FOR YOUR RIGHTEOUS ACTS HAVE BEEN REVEALED."

Psalm 63:3
Because Your lovingkindness is better than life, My lips will praise You.

Psalm 150:1-6
Praise the LORD! Praise God in His sanctuary; Praise Him in His mighty expanse. Praise Him for His mighty deeds; Praise Him according to His excellent greatness. Praise Him... Praise Him... Praise Him... Praise Him... Praise Him... Praise Him... Let everything that has breath praise the LORD. Praise the LORD!

Praising God this morning for:
*a great night for Judah
*a nurse that we've had several times, who really likes Judah (but, really, who doesn't?), requested to have him today:) We like her a lot, too!
*the coffee shop had my favorite kind of muffin
*Judah is back! Happy, silly, flirty, energetic!
*sunshine
*all the wonderful verses that some of you have shared with me!!!

You know you've spent too much time here when...
...Judah starts picking up nurses' habits, i.e. rubbing his hands together ("washing his hands") like the nurses do every time they enter or leave his room.
...the nurses joke that you could work here, because you know "too much".
...your daughter knows her way around the floor, can help herself to the ice/water machine, knows the playroom rules by heart, and loves to skip her way along the ribbon that runs around the floor.
...Judah has his favorite nurses.
...the coffee shop lady knows your drink and muffin of choice.
...the nurses leave you alone in your room to provide care for your son, because they know you can do it better than they can.
I think I'm getting over the "sad" of being able to make jokes like this, and moving towards having more of a thankful heart. This is what Judah's life looks like. It just is. And while this is not something I would have ever chosen in a million years, I'm thankful for all the silly little things I joke about. They make a difference.

I'm also praising God for:
*A great procedure yesterday! The nephrostomy tube was placed without a hitch, and the surgeon was able to drain a lot from the kidney during that time. They were expecting straight puss, but thankfully his discharge has just been cloudy with some "debris". And he's been draining really well since then. I can't believe how much that kidney was holding - no wonder he's been so sick - but it seems that now we're on the right track, and finally on the road to recovery. Between the drain and the IV meds, he should remain well enough for the surgery on the 12th. I continue to pray that the Lord will allow him to move past this after surgery, and be infection-free again...for a looong time! It's a little daunting to add the care of his new tube to the IV meds (not sure what changes Infectious Disease is going to make to those yet), but it's for a short time, and I know God will take me just one step at a time.
*An evening with my kiddos! Jared and I traded last night so I could take the kids to the National Night Out. I'm so, so glad I did that! I needed the break and we all needed the time together. We came back to the hospital around 9 to show Daddy all the kids' treasures and have some family good night cuddles.

Judah had an echo this morning. He has a slight murmur - sometimes the docs here it, sometimes they don't - and because of all the high fevers he's had recently they wanted to follow up and make sure he's still fine.

ID is waiting for the cultures to come back from the urine the surgeon sent to lab yesterday. The results of the cultures will determine how they medicate him from now until the 12th. Once we're at 48 hrs. (tomorrow) they'll have a 97% result from the cultures, and will be able to make that decision. Then we can go home! Pretty sure that will happen tomorrow. He's doing so well - no fevers for 48 hrs., great drainage, back to himself - they just can't keep him here for much longer:)

I've noticed that it's much easier to have an attitude of praise in the morning. When the previous day with all it contained is in the past, the night is over, the sun is shining, and the day is fresh I can more easily go to the Lord and be thankful. It's at day's end, when I'm battling fatigue and discouragement, that I have a harder time holding on. Those are the times that I look back on and see clearly that God's grace is sufficient, and He is an ever present help in distress. That's when I'm encouraged to continue leaning on His everlasting arms. This is really hard. BUT GOD...

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